Lila completed her EEG last week and the results were not what I hoped for. While she did not have a seizure during the test, it did show abnormal brain patterns reflecting the potential for seizure activity. While medication may be necessary, I decided to hold off on that until we are sure her seizure wasn’t isolated. That means if she has another seizure, she will start anti-seizure medication right away.
For two weeks now I’ve been a nervous wreck. I can’t take my eyes off of her and I’m analyzing every move and facial expression she makes. If she makes a funny face, I brace myself. The rearview mirror has been stuck in a position where I can keep an eye on her in the car seat. Probably not the safest course of action … I wish I had eyes in the back of my head.
The good news is that she has been seizure-free for two weeks and has been her happy joyful self. She’s bursting with new vocabulary and while she still hasn’t formed full sentences, she’s starting to put more two-word combinations together and use words to communicate what she needs and wants: help, up, down, more, etc. Her voice is so sweet.
Please keep Lila in your thoughts and prayers as I am CERTAIN the energy you all have put into the universe is keeping her (and me) on a path to success. xoxo