Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

EEG results October 26, 2012

Filed under: Lila,Updates — Aimee @ 9:54 am

Lila completed her EEG last week and the results were not what I hoped for. While she did not have a seizure during the test, it did show abnormal brain patterns reflecting the potential for seizure activity. While medication may be necessary, I decided to hold off on that until we are sure her seizure wasn’t isolated. That means if she has another seizure, she will start anti-seizure medication right away.

For two weeks now I’ve been a nervous wreck. I can’t take my eyes off of her and I’m analyzing every move and facial expression she makes. If she makes a funny face, I brace myself. The rearview mirror has been stuck in a position where I can keep an eye on her in the car seat. Probably not the safest course of action … I wish I had eyes in the back of my head.

The good news is that she has been seizure-free for two weeks and has been her happy joyful self. She’s bursting with new vocabulary and while she still hasn’t formed full sentences, she’s starting to put more two-word combinations together and use words to communicate what she needs and wants: help, up, down, more, etc. Her voice is so sweet.

Please keep Lila in your thoughts and prayers as I am CERTAIN the energy you all have put into the universe is keeping her (and me) on a path to success. xoxo

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Hello, it’s me again October 12, 2012

Filed under: Lila,Updates — Aimee @ 10:46 am

It has been a long time since I posted here. So much has changed in our lives over the past several months. I’d like to get back to blogging about Lila and her progress regularly. She’s such a shining star and I want to remember every moment.

Overall, Lila is doing quite well. She’s a healthy, happy 2 year-old with a smile that lights up the room and can turn the worst day around in a second.

Last night, however, something really scary happened however. Lila had a probable seizure. I say “probable” because there’s no way to know for sure at this point. Based on her medical history and what I described to the doctors, they believe it was a focal/tonic seizure. We were in Target, Lila was sitting in the cart, and she starting flailing uncontrollably. I grabbed her out of the cart and she fell limp into my arms and looked at me with a blank stare. I started running out of the store with her and about halfway out, she started laughing at me. Typical Lila. So if it was a seizure, it was short and I guess that’s a good thing. We have to follow up with a neurologist next week. If she has another episode, back to the emergency room we go and Lila will likely start anti-seizure medication. I’m a nervous wreck and can hardly take my eyes off of her.

When the seizure happened, I wasn’t entirely surprised. Freaked out, but not surprised. Many kids with cerebral palsy experience seizures and I’ve counted my blessings that Lila never did. I hope and pray that this was an isolated incident.

As of this morning, Lila is back to her normal, happy self. She’s chatting up a storm and has new words daily. My current favorite: bubbles. She’s obsessed with bubbles. She also loves Mr. Potato Head, so she likes to say “hat.” Man I love her. Thank you all for your continued thoughts and prayers for my Bug. We are so lucky!

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Despite her surroundings, still smiling in typical Lila fashion.