Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

Therapy Week 1 January 14, 2012

Filed under: Constraint therapy,Lila — Aimee @ 10:25 am

Lila is adjusting to therapy and the cast quite well. Better than I anticipated, actually. We are seeing some improvement with right-hand use, such as reaching for toys, feeding herself with a spoon, etc. We are getting the hang of bathing and dressing Lila with the cast and she seems like her happy old self, although more tired.

It’s been a busy week and I miss seeing my little girl. I guess this is what it feels like to have a child in full-time daycare. I don’t like it so much. By the time we get home it’s close to 5 p.m. and time for dinner, then a bath, some cuddle time, then a bottle and bed by 7 p.m. I had Friday off from work so I thought I’d try to spend a few hours at therapy with Lila, but she was a little clingy and acted like she wanted to be held by me instead of play with Jayne.

This isn’t normal behavior for Lila, so I suspected she wasn’t feeling well and perhaps even had an ear infection. Whenever she’s had an ear infection before, she’s been crabby, sleeps poorly and has weak head control, tilting to one side. These are all things she was showing, so I thought I’d better get her ears checked out. The goal of the constraint program at Children’s is to complete six hours of therapy for 21 days and they try really hard to stick to it. So rather than taking Lila to her regular pediatrician, which is 30 minutes away, I called around and found an opening just down the street. Turns out the ears were fine and we were back in less than an hour. Better safe than sorry. Maybe it’s teething? I’m glad her ears are good, but her weak head control is puzzling. She’s great most of the time, but every now and then she’s had trouble holding her head up nice and straight and we’ve never been able to figure out why or what causes it. It has lasted for a few days to a few weeks and throws her off in every way. We hope it’s corrected soon, because I believe it will impact the amount of progress she can make.

After the doctor appointment, I brought Lila back to therapy and again, she whimpered when I set her down. She looked at me as if to say, “Take me with you!” This is definitely a new stage for her. As much as I wanted to stay with her, I knew it was best to go and let her do the work she was there to do without the distraction of mommy being in the room. There is an observation room, so I’ll hang out in there occasionally.

The view from the observation room. Lila uses on iPad to work on reaching and playing with her right hand.

Lila is eating really well, and drinking good, too. She’s on a medication to increase her appetite and that seems to be working. After months and months of encouragement and money spent on 15 fancy “sippy cups” to get her to drink milk from a cup, we have finally landed on good solution: a regular open cup. She does have one cup with a straw and handles that we continue to encourage her to drink from, but she drinks best and gets the most volume from a regular ‘ol-fashioned cup!

Marketing gimmick or gullible mom?

Lila is back at therapy again today. The first week includes Saturday, but from now on she will have the whole weekend off. Tyler is in Duluth for work, so I’m at home with the dogs. The house is eerily quiet and I’m not quite sure what to do with myself. The chores have been done, the refrigerator is full and I have zero money to blow at the mall, so what’s a girl to do? I’ve been up since 5:30 a.m. so I think I’ll take a nap first.

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2 Responses to “Therapy Week 1”

  1. Sheri McCoy Says:

    Yay…..sounds like a great first week! Thanks for the updates and remember that I am “rooting” for all of you!!!

  2. Lila had an ear infection. Whenever she’s had an ear infection before, she’s been crabby, sleeps poorly and has weak head control, tilting to one side. whether she have an recurrent ear infection ?


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