Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

Therapy Day 1 January 9, 2012

Filed under: Constraint therapy,Lila — Aimee @ 8:53 pm

Day 1 is over and what a huge relief. We are all EXHAUSTED and happy to be home after a full day at the clinic.

Lila did not sleep well last night, so nobody did. Usually she’s a great sleeper so I hope this doesn’t signal an ear infection or something of that nature. We’ve started waking her up at 7 a.m. when she’d prefer to sleep until 8 or 8:30, so that didn’t help matters either. We have to leave the house by 7:30 a.m. to get to the clinic by our 8 a.m. start time. As instructed, we gave Lila some milk, changed her diaper and loaded her in the car still in her PJ’s (getting dressed/undressed is all part of the therapy process).

We arrived and met our therapist Jayne. She gave us a tour and showed us where Lila will be napping, playing, etc. Tyler set up the pack and play in an empty back office room while Jayne did an initial assessment of Lila to see where her skills are. She video taped a portion so that she can compare Lila’s progress at the end of the four weeks. Lila had the same assessment four months ago when she was being considered for the program and it was incredible to see all of the things that she could do now that she couldn’t back then.

The morning nap went off without a hitch and then it was time for the casting. Lila was none too happy to have her good arm restrained while the therapists wrapped it in the casting material. We tried our best to distract her, but she eventually broke down in tears. They were able to finish the casting while I held her.

The rest of the day was spent doing lots of physical and occupational therapy. It’s really playtime disguised as therapy, but there’s A LOT of repetition. Throw the ball to daddy again and again and again. That repetitiveness is what creates the new pathways in her brain (we hope). Lila’s second nap (with the cast on) was a little more difficult.

I’m glad the casting is done and I feel a weight lifted knowing that Lila is truly in the best hands she can be right now. Jayne is wonderful and we really like her a lot. She is going to be spending a lot of time with Lila and us, so it’s truly a bonus that we like her as much as we do.

Once home, Lila was a little quieter than normal. A little more somber. She’s tired and probably a little frustrated that she has a big ‘ol cast on her hand. For the first time she tried feeding herself with her right hand. It was really difficult for her, but she was able to get a few bites in. It took her a little longer than usual to fall asleep tonight and I suspect we’ll be up a few times in the middle of the night. With the cast on, Lila can’t roll around in her bed and grab her pacifier as easily as she’s used to.

Both Tyler and I have to work tomorrow and won’t be able to spend the day with Lila. Tyler will drop her off in the morning as I’ll be at work by 7 a.m. I will pick her up at 4 p.m. I am working an extra day every week this month to make up for the time that I’ll be leaving early to pick Lila up.

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