Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

Ready. Set. GO!!!!!!!! January 8, 2012

Filed under: Constraint therapy,Lila — Aimee @ 9:32 pm

All dressed up to see Santa Claus

Aaaaannnddddd ….. weeee’rrrreeee ….. baaaaacccckkkkk!!!!!

Hi everyone! Let’s just pretend that little lapse in posts these past few months never happened. OK? I hope everyone made it happily and safely through the holidays and into 2012. We had a bit of a rough end to 2011 but 2012 seems like it might have intentions to be a little nicer to us. Fingers crossed!

Lila is now almost 16 months old and is the happiest little gal on the block as far as I’m concerned. There’s so much to share with you all, so perhaps an abbreviated roundup will do for now. The BIG news is that Lila begins four weeks of intensive arm constraint induced movement therapy tomorrow! Yeah, it’s a mouthful isn’t it?! More on that later…

1. Weight problems. We had some weight gain issues (read: NOT gaining) for a few months and she even lost weight at one point while she was fighting off a cold and a series of ear infections. She was prescribed a medication to increase her appetite so we’re going to try that for a few more weeks and see if it makes a difference. I hate to have her on unnecessary medications, but we need this little one to gain some weight! At the last check she weighed 18 lbs. 3 oz. Lila likes to eat, but she doesn’t seem to eat enough. Her increased muscle tone requires her to have more calories in her diet than the average baby. If you are reading this and are having similar feeding issues with your child, leave a comment and I will get in touch with you. I have plenty of tips and tricks to increase calories.

2. Diagnosis. We finally received the official diagnosis of cerebral palsy a few weeks ago. It came from two different doctors in the same week. I handled the news really great, well … because it wasn’t news. We’ve always known it. We’ve always said it. Now it’s just “official” in her medical records.

3. Talking! I have been nervous about Lila’s speech for quite some time. Some CP kids are non-verbal. Some are very delayed. Lila was a pretty quiet baby comparably speaking and it’s sort of been the elephant in the room. I worried. Tyler didn’t. Finally someone with Lila’s early intervention program suggested we have a consultation with a speech therapist. Great. Another therapist. Another appointment. Lo and behold a week later Lila started “chatting” up a storm and this clever little girl even said her first words this weekend. First word: HI! Not surprised about that one. Our social butterfly! Second words (maybe): All done! And her third word (for sure): Mama! This is all a HUGE deal in this house and believe me, we have been celebrating!

4. Getting smart. All of a sudden, Lila just gets it! She gives kisses, high-fives, plays paddy-cake, claps, brushes her hair, feeds herself with a spoon, holds her own cup, points to her nose, waves hi and bye bye, shares her food and toys with others. She’s pretty much off the cuteness Richter scale these days.

5. Sitting up. Not quite, but I’m counting it anyway! She’s getting so close. She can sit without help for 30 seconds or so.

6. Constraint therapy. I’ll be updating the blog more often to include lots of information about the therapy program that Lila starts this week. She will be getting a hard cast on her dominant arm and will spend eight hours a day with a physical therapist to re-learn all the skills that she’s already mastered with her dominant arm. She will engage in repetitive exercises with her affected arm, and hopefully her brain will grow new neural pathways. This is going to be no easy feat, but we are so excited to see her progress. Naturally, I want to share that with you, so stay tuned!


2 Responses to “Ready. Set. GO!!!!!!!!”

  1. Vickie Blanchette Says:

    But, they will cast her dominant (left) arm for this, right??????

  2. lila’s fighting off a cold and a series of ear infections. how’s with lila ear infection right now ? have you tried natural remedy for her ?

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s