Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

Farewell for now March 21, 2011

Filed under: Uncategorized — Aimee @ 11:27 am

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I’ve been a very bad blogger. Many of you keep coming back to see the latest update on Lila only to find old posts from several weeks past.

Lila is doing very well. She’s growing. She’s happy. Yet we still struggle to feed her. Our schedules are overloaded with physical therapy, occupational therapy, nurse visits, pediatrician, and other various specialists who all have their best intentions to help us figure out why Lila will eat only when she’s asleep. But we have reached an overwhelming point where we need to put a stop to so many of these wonderful services so we can stop obsessing her challenges and start celebrating her successes.

I also need to take a personal time out to focus on myself and my immediate family. I am going to take a temporary leave of absence from the blog, but I will be back! I look forward to updating you all next time after a (hopefully brief) cleansing of the mind.

Until then, here’s a recent picture of Lila. Love to you all! Thank you for your continued support.

Love,
Aimee

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GI test a success March 3, 2011

Filed under: Lila,Updates — Aimee @ 10:10 am

Lila successfully passed her upper GI test this morning. I knew she would, but it’s reassuring to know that everything is anatomically correct. We still can’t figure out why Lila will only eat when she’s sleeping. The past few days, she’s gotten better, but she still has trouble getting into a rhythm when she’s awake. The most she’ll take awake is one ounce and it’s a struggle with lots of starts and stops. At least she’s not yelling at the bottle like she was before. I’m hopeful she’ll grow out of this, but in the meantime, I’ll follow-up with the feeding clinic at Children’s and I’ve also asked an occupational therapist to come to the house and work with us.