Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

2010 Year in Review December 31, 2010

Filed under: Uncategorized — Aimee @ 10:02 pm

It’s been a tough year to say the least. I knew I wanted to write a post to summarize 2010. Or did I? Can’t we just forget it ever happened? I’ve been thinking about it all day; just don’t know what to say. Maybe if I start typing, the words will just come. Here goes …

Lets go back to 2009 for a moment. It was a good year. Family vacation to West Virginia, a romantic vacation to Florida with the love of my life, and a decision to grow our family. On my 28th birthday, Nov. 5, 2009, we learned I was pregnant. Fast forward two weeks and we’re in the labor and delivery unit of the hospital waiting for a shot of methotrexate to dissolve the pregnancy. Our baby was not viable. It was an ectopic pregnancy, meaning the egg had implanted itself in a fallopian tube instead of the uterus. My life was at risk if we let the pregnancy continue.

Three months later I became pregnant again. (we didn’t waste ANY time) I lived in fear for the first 12 weeks, worrying that I’d lose another baby. But finally, we could share our happy news with the world. During an ultrasound, we saw the baby in the uterus and saw her heart beating. We were really pregnant this time! I made pink and blue cupcakes for all of my co-workers and could hardly contain my excitement. I puffed out my stomach when I wasn’t REALLY showing, wishing someone would notice and ask if I was pregnant. I took my first “belly picture” on the roof of the Star Tribune with the city skyline as the backdrop. How cinematic, right?!

A week or two later, my world came crashing in. We all know what happened from there, so I won’t rehash the details. I went into survival mode. I spent the next 13 weeks with my eye on the prize, hoping, praying, believing that all would end well. I checked out from Abbott Northwestern Hospital a new Aimee with a new outlook on life — an appreciation for truly small things and a big belief that miracles really do happen. Despite my baby holding on for dear life, I remained the happy, positive, naive??? mother that I was when I laid in that hospital bed knitting baby hats for so long.

Everyone told me that the ENTIRE experience would be a distant memory in no time. I’m still waiting. It’s still fresh in my mind with no sign of it going away anytime soon. I love my daughter. I am grateful for every ounce of her being and so damn proud of her for all that she’s endured. I feel lucky. Not all of the pPROM moms have happy endings and we mourned many of their losses along the way. Despite Lila being home with us in time for the holidays; despite seeing her REAL smile for the first time; despite FINALLY being a mommy to the most amazing girl in the world … everything is not okay.

I debated how honest I wanted to be in this post for fear that some of you might judge me if you really knew how I felt. But I know there are other pPROM moms out there reading; some who are laying in a hospital bed right now holding on to dear life, and I believe it’s fair and necessary to be honest for them. My crew of pPROM moms … hell, they’re my friends, my sisters, my heroes .. started a dialogue about this recently. I was relieved to know I’m not alone in finding it difficult to get past ALL OF THE STUFF of the past several months. I don’t have it in me to find the words to eloquently discuss what this experience has been like now that I’m on the other side of it. Since I don’t, I want to share with you what my friend, Elisa, wrote, regarding the issues we’re dealing with. With her permission, here’s what she wrote:

Last night I had a dream I was pregnant and I woke up utterly terrified, with real tears in my eyes. Note to self: residual trauma still on board. Scar tissue still tender. I am ever grateful for the incredibly lucky gift of Bennett, but I wonder how long it will take for the trauma of that long hospitalization to work itself through and out of me (and note, I am a licensed therapist who has worked with many clients recovering from various traumas, etc.).

It is common to meet preemie moms who can share and offer support of what the NICU trauma/preemie mom stress is like. And the support means a lot … knowing someone can relate.

But I’m finding the double-whammy of a long personal hospitalization on bedrest (mine was 90 days in the hospital) followed by a baby in the NICU is not something you easily pick yourself up from and just dust yourself off. I’m grateful for this group, but I really wish there was an actual place I could just go once a week and sit face to face with other moms who went through this and let it work itself out by talking about it and moving through it/past it. This group is awesome. I just wish it were live and in person.

Sorry for the long post. Again, I am so grateful for Bennett and every day I hold that we were blessed with such luck for his outcome. I’m just still struggling to find my sea legs and any sense of normalcy. It’ll come in time, but at times I think I’m still in shock over EVERYTHING. The water breaking, the hospitalization, missing June/July/August, all of it.

Thank you for being a place to go to … I’m wishing you all some peace as we move toward this holiday week.

xo,
Sentimental in San Francisco
A week later …

Follow Up to the Trauma Post I Wrote Last Week:

I was moved by all the responses to the post I shared last week discussing how the trauma of all we’ve been through seems to be catching up with me now. It was clear I am not alone in struggling to recalibrate after all we’ve been through. As you know, I am a therapist. That said, I do not always feel that therapy is the right response for every tough situation in life and that people use all sorts of healthy coping mechanisms (and unhealthy ones) to deal (or not deal) with that gets them stuck or what they struggle with. However ………

Yesterday, for the first time since my water broke, I went back and saw my therapist. I haven’t seen her since dealing with the fertility issues we had in trying to conceive Bennett. A few weeks ago, I realized that for my sake, my family’s sake, my relationship with Bennett’s sake … I deserved some support in sorting out what happened and where I find myself now. I didn’t want to go. I’m too overwhelmed to go. So many excuses on why not to. But I realized I needed to make it happen. I’m so glad I did.

I’ve been wanting to write this to all of us and have been trying to find a way to share it without sounding preachy. Here goes: we all went through a significant trauma. Being the parent of a preemie is trauma enough, even if your water never broke far in advance. But … we had bedrest. We had fears our babies wouldn’t make it. Some of our babies didn’t make it and we are left holding that loss. We had lengthy hospitalizations. Many of us had traumatic births, both surgical and vaginal. We had to hold for quite some time that our baby might not make it. We had separation from our loved ones, for some of us … our young children. This was a trauma. Losing your child is a trauma. Watching your baby be intubated (or not being able to watch because your behind a blue curtain) is a trauma. AFI scans were a trauma. All of it. It impacted our partners, our children, likely our parents and the parents of our partners, and on and on.

Mostly, it impacted US. There is scar tissue. How many of you feel a twinge of sadness, jealousy, whatever when you see a fat healthy newborn or a 9 month pregnant woman walking out of her yoga class? grocery store? For those whose babies died, I can’t imagine the feeling of loss after being so brave and fighting so hard for your child. It’s all so unfair.

For those of you who have wondered if these feelings will ever go away, I think they CAN transform. However, your thoughts and feelings about what you went through deserve some attention. You are all truly such incredibly brave, courageous, beautiful mothers. The residue of what lingers can transform … but not without some attention. It is near impossible to find the time to get to therapy, I’m sure. And of course, financial resources are wiped out after all we’ve been through. But I just want to say that you ALL deserve that support. You are worth it. Your family relationships are worth it. You had to show a strength (and sustain it for a LONG time) that many will never have required of them in a life-or-death way. YES. For many of us, our babies are here. Miracles, indeed. They will likely be alright. The NICU is over. We are at home. But making sense … making MEANING … of what happened is of value. For our own health.

If you have thought of doing therapy, but push it aside because of money or time constraints, I have this thought: it could be the single most important thing you do for yourself so you have more capacity to be the kind of mom you want to be to those babies you worked so hard for. It’s not easy to open it all up again, but the alternative (if not resolved … through therapy or other ways that might be more helpful to you) isn’t good.

You are amazing women. I am SO DAMN GRATEFUL to have encountered you on this incredibly frightening, strengthening, horrific and blessed journey. I encourage you to consider getting a little support. It need not be long-term. Anywhere from 3-6 sessions could make a tremendous difference. It takes a while to heal from what we experienced (physically/mentally/financially/medically/etc.) and I do believe that there would be excellent therapists willing to meet with you at a sliding scale rate. If you are interested, I’ll share how I think that can be arranged based on the way I work with clients who encounter financial hardship that can keep them from doing therapy when they’re in need.

I honor that there are many ways to deal with sadness/trauma/pain/grieving the loss of our summers, healthy pregnancies, healthy babies, etc. Some turn to faith, exercise, the arts, etc. There are many ways to deal with grief and loss. I also honor that if I were a millionaire, my Christmas gift to all of you would have been 6 sessions of therapy, a massage, your favorite cocktail, a once-a-week nanny so you can get out and 4 hours at the hair salon.

Sending a lot of love, appreciation and tremendous respect for you all. I am happy to hear from any of you who might be considering therapy on how/why to make it work. You are worth so much support!

Love from California,
Elisa

Well said, Elisa. THANK YOU.
So for 2011, I resolve to deal with any and ALL residual effects from 2010 and find the Aimee I discovered in room 5480 of Abbott Northwestern Hospital … so that I can be the mommy that Lila deserves.

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3 Responses to “2010 Year in Review”

  1. Fleur Says:

    Aimee – you are one strong mama, but, even the strongest mama needs help, time to cry, time to celebrate and time to take stock and process all that YOU have been thru. Thankyou for being so honest in your blog – I have enjoyed reading it and finding out how you and Lila and your family are doing thru your rollercoaster pregnancy, birth and motherhood. I have turned to therapy to deal with troubles in my life and I highly recommend it and hope you can find the time and the resources to do the same, as Elisa suggests. I would love to come over and watch Lila for you if needed, just call.
    I have told you before, I don’t know if I would have made the same decision as you – I don’t know if I would have been strong enough to go thru all that you have. And I don’t know if my marriage would have been. So I applaud you and Tyler for making it thru 2010 and for creating, birthing and now parenting the sweetest lil gal I know (seriously I mean it) and I hope that 2011 is an easy and peacefull year for you all with lots of closure and then moving forward.
    Lots of love and dribbles (from Crosby)
    Fleur

  2. Sheri Says:

    Aimee,

    Stay strong and positive! You are an awesome Mom and don’t forget that!

  3. Mom Says:

    I forget sometimes that you are still fighting to maintain normalcy in your life. It’s getting better!!! I look back on this past 7 months and am continuously awed by the woman I see in my Daughter!! I will never, ever foget the phone call from you the day your membranes ruptured……truly my heart was broken into a million pieces for my baby who was likely losing her baby. A baby so dearly wanted and loved already. I found that there really are things that a Mom cannot fix…..I’ve had that lesson back to back now and it still is not an easy concept to digest.

    But, the last seven months have given me the pleasure of witnessing your amazing strength and resolve. As you write your innermost thoughts on this cyber venue it always strikes me that there is no self-pity! Through all the anxious moments of not knowing what comes next, throughout months of total bed rest, worry that the outcome could be devastating anyway, redefining your life in a split second and maintaining some semblance of a life in your new reality, I watched you grow as a woman in ways that can only be defined as miraculous. I am in such awe.

    And now we get to watch this little miracle baby and what a miracle she is!!! I started this post before she went to the pulmonologist today and what a day for rejoicing!!!! The pictures you have posted tonight have made lots of us smile and feel the goosebumps that come when we know we have just witnessed something amazingly special. 2011 is going to be very, very good as she continues to show us her little spirit and determination. I love this little Lila Kalét and am so excited to be her Nana.

    As for you, my sweet daughter…..keep on being you. There are going to be challenges all your life and you will handle them as you’ve handled this; with determination, resolve, strength, pride and faith. Thank you for making me so darn proud to be your Mom. You are so special. I love you.,


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