Baby Tjader's Journey

A life undefined by pPROM, prematurity and Cerebral Palsy.

Day 47 October 31, 2010

Filed under: Lila,Photo/video updates — Aimee @ 12:40 pm

Happy Halloween!!!





Just mere hours after Lila’s doctor told us she wasn’t progressing fast enough with her bottle feedings and therefore probably wouldn’t be ready to come home by her due date, Lila showed everyone who’s boss. She went from barely completing one full bottle feeding in a 24-hour period, to completing four! She needs to finish eight feedings by bottle or breast in 24 hours, so we still have a lot of work to do, but she’s getting there! I swear this kid has been determined to prove everyone wrong since the day she was conceived. She’s one determined little gal.

Lila’s oxygen requirements are much improved over the past few days, so this morning the doctor ordered her O2 flow to be turned down from 1.5 liters to 1 liter. We’ve tried this once before and she had to be turned up again. We’re still crossing our fingers, but so far today, she’s handling the lesser flow beautifully. The doctor may switch her to a regular flow cannula by the end of the day if she does well. This is important, because if Lila were to go home on O2, she’d go home on a regular flow cannula, not a high-flow cannula. One more step closer to home. Mission: HOME!



2 Responses to “Day 47”

  1. Cindy Daley Olson Says:

    Hi Amy, I am Robin and Annie’s aunt and met you a long time ago up in EGF. Andrea was down and shared your blog with us. It is fascinating to read and I feel I am re living our son Adam’s experience 32 years ago as he was a preemie too. Your little one is just adorable and I can’t wait until you can have her home with you. Such a little miracle. Her halloween costume is precious. I sent prayers and tons of good wishes yo you all. I remember Adam having to PROVE he could guzzle that milk down before h e could come home too. You go little girl.

  2. Mrs E Says:

    I keep checking in on Lila’s progress. I glad she is proving everyone wrong and showing what a fighter she is. Every step closer to home is better. have Maisy laying on my tummy sleeping with post breast feed bliss face – can’t wait for you to get to that stage too.
    Rachel pprom @ babycenter

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