Our baby girl is two weeks old already! I arrived to the hospital this morning to find my sweet girl sleeping comfortably WITHOUT her breathing tube! Lila was extubated and taken off the ventilator this morning. She’s graduated to the nasal CPAP, which delivers constant air pressure through her nose to help keep her lungs open. This is a big step up from the ventilator so we’re very excited. Now we’ll be able to hear her cry. She didn’t cry during my morning visit, but I could hear some cute little baby cooing going on. She is much happier and more comfortable without having a tube down her throat. Yeah, I probably would be too. So far, she’s doing fantastic with the changes, so we’re hopeful she will never have to be on another ventilator in her life!
As the saying goes, life in the NICU is a rollercoaster. Never did that become more apparent than today. Still flying high from the wonderful news that Lila was taken off the ventilator, the doctor gave us some difficult news and it has nothing to do with her lungs. I’m not ready to talk about it or write about it. I’m still trying to make sense of it and find the strength to be the positive and hopeful spirit that my daughter needs me to be right now. I will share more with you as soon as I’m ready, but please know that everything is ok and it’s nothing life-threatening. And as my wise, strong and amazing husband said today: “We need to hang our hats on all of the positive strides she’s made in the past four or five days.” I will try to do that today and I ask you to celebrate these milestones with us.
So with that said, here’s a photo and video that I shot last night while Lila was wide awake for my visit.